Hey Everybody! I wanted to share with you this cool genetics testing that is available to people. I just got it done, because my nurse practitioner ordered it and Medicare pays for it. (Medicare pays for this testing, because it saves a LOT of money and can save lives!) It is really cool, because it tells you how medications will interact with your specific genetic makeup! It is extremely important if you are taking really any kind of medication. For example, had I known about my results before I took Wellbutrin years ago, it would have saved me from basically having a manic reaction to the medication. It turns out that I metabolize differently than normal on some of the metabolic pathways. This means that I will metabolize the meds on those pathways different than people without this issue. If you have Medicare, I strongly urge you to get this testing done. It could save your life from a bad genetic-medication mistake. I think many other insurance carriers might also pay for it. It also explains why I can take a lower dose of many medications and still get the desired effect from the medication. I would say that anyone who is trying to figure out their psych meds should really get this testing done too. It doesn’t just tell about psych meds though, it tells about stuff involving all other sorts of meds. Seriously, this is pretty awesome! Again, here is the link: http://www.genemedrx.com/
Psychology
Elyn Saks TED Talk About Her Schizophrenia
Elyn R. Saks, Kristin Bell, Mental Health, Mental Illness, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, TED Talk, The Center Cannot Hold, VideoGot My Cure Alliance Schizophrenia Magnet Today! Yay!
Activism, Anti-depressants, Anti-psychotics, Anxiety, Bipolar, Brain, Cure Alliance, Depression, insanity, Kristin Bell, magnet, Mania, Manic-Depressive, Mental Health, Mental Illness, Obsessive-Compulsive Disorder, ocd, Psychiatry, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, szHi! I’m happy to report I got my Cure Alliance schizophrenia magnet today! Strange that my bumper wouldn’t hold the magnet! haha. Anyway, please check them out at the Cure Alliance Facebook page here. Also, see the related post I made about their campaign here.
Excited About Perception!
2012, Acceptance, Anti-anxiety meds, Anti-depressants, Anti-psychotics, College, Crime Solver, Eric McCormack, insanity, Kristin Bell, Mental Health, Mental Illness, Paranoid Schizophrenia, Perception, Professor, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, TNT, TV, UniversityHey Everybody! I’m really excited about this new show on TNT called “Perception.” http://www.tntdrama.com/series/perception/
It stars Eric McCormack (of Will & Grace fame) as a university professor, author and crime solver who is also living with schizophrenia! I’m always skeptical of depictions of people with mental illness on TV and in movies, because they usually make them out to be psychopathic killers or something. I’ve watched the first two episodes of the show so far, and I think they do an excellent job of making the character seem like a regular human being! It is so fantastic! They use the hallucinations as kind of a dramatic device and employ some other Beautiful Mind-esque devices to try to make it like the viewer can see what the character is seeing. Some commenters have argued that it doesn’t show the horrific aspects of schizophrenia enough, but I personally like that they are showing him to be a regular person, and an intelligent one at that! I like that they show him holding down a job, interacting with people socially, and using the help of other people to reality test. I’m excited to see how the character and the show develop and I hope it gets picked up for another season! Please check it out if you get a chance! Again, it is on TNT Monday nights. Here is the TNT link: http://www.tntdrama.com/series/perception/
Wonderful Video Documentary About a Mother with Schizophrenia
2012, Acceptance, Activism, Allies, Anti-psychotics, Children, Depression, Discrimination, DSM-5, Education, Families, Family, Grandmother, insanity, Kristin Bell, Mental Health, Mental Illness, Mom, Mother, Motherhood, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, SchizophreniaI’m taking a Women’s Studies course at school and we are looking at the topic of Motherhood. This week we are discussing motherhood and disabilities, and I came across this wonderful video series that is made by a student about a mother who has schizophrenia and how it has impacted her life and the life of her daughter. I think he did a really good job! The video is divided into four parts and I hope you watch all four parts! :)
http://www.youtube.com/watch?v=Hx6j_Tyb8Uo&feature=share&list=PL81E9C419F7641FD8
The Haldol Injections: After 10+ Years
2012, Anti-psychotics, Denial, Haldol, Haldol DEC, Haldol Decanoate, insanity, Kristin Bell, Lunatic, Medicine, Mental Health, Mental Illness, neurotransmitters, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, SchizophreniaI first wrote about taking my Haldol injections back in 2007 in https://kristinbell.org/2007/07/23/the-haldol-injections/.
I wanted to report that yes, I’m still getting the Haldol injections now once every three weeks. Haldol is an antipsychotic medication used to treat psychosis like that found in schizophrenia. I have schizophrenia and started getting the Haldol injections back in late 2000…I guess it was November or December of 2000. The Haldol injections combined with all the other meds I take have been a miracle for me.
So far (knock on wood) I haven’t had many side-effects from the medication. I haven’t yet developed tardive dyskinesia. I hope that I don’t.
I had to start getting the Haldol injections, because I couldn’t take my medications as prescribed. It sounds like a simple enough task, but my illness got in the way of me adhering to my medication regiment, and I’d wind up going off my meds and going crazy. I’ve had a good run with the Haldol. I haven’t been hospitalized since starting it, and if you know anything about people with mental illness, that is quite a feat! :) Without the injection form of the medication I’m pretty sure I’d still be bouncing in and out of insanity and in and out of hospitals.
Haldol is a powerful medication, and not one that people enjoy taking. It can cause a lot of sedation, but in the right dose with the right brain it is a miracle drug. It doesn’t work for everyone, and I probably wouldn’t extoll the virtues of it if I was taking the oral form of the medication. With the injection form of the medication I am able to take less of the medication while still getting the benefits of it. I believe that there are also short-acting Haldol injections for acutely psychotic patients, but I am getting the long-acting injections which metabolize over a number of weeks.
I know that a lot of people, including people with schizophrenia and other brain diseases, are afraid of getting injections of medication. If you are paranoid and psychotic, like I was when I first got the injection, it is terrifying to get the injections. I actually believed that the doctors were giving me a lethal injection to kill me when I got my first dose. It turns out that it was the best thing that ever happened to me, not the worst. Now there are other medications that come in injection forms too. Meds like Risperdal and others. If Haldol doesn’t work for someone then maybe one of the other injectables will work. At any rate, I think it is worth giving them a try. It may take awhile to get used to the meds and to get the correct dosing, but it is worth it in the end.
Mental Health Update: Monday, May 28, 2012
2012, Abilify, Acceptance, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Autobiography, Bipap, Body Image, Body Narrative, Brain, Buspar, Depression, Diary Rant, EDNOS, Fat, Fat Acceptance, Fat Hatred, Haldol, Haldol DEC, Haldol Decanoate, Happy, Health, Injections, insanity, Kristin Bell, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, Sleep, Sleep Disorders, stigma, Weight, ZoloftI thought I’d do a little mental health update, since it has been quite some time since I’ve blogged about my overall mental health. As some of you dear readers may know, I have schizophrenia. I first had issues with it when I was about 15. My first hospitalization was when I was 16. Towards the end of 2000 I got mostly stabilized with my Haldol injections and Zoloft. I haven’t been in the hospital since then! Yay! Quite a long run I’ve had and I hope it continues! For quite some time I had problems getting things done, being motivated and feeling down…that sort of thing, even though I was mostly fine. I think it was last year that I started taking Abilify and it has made a HUGE difference! I’m still taking Zoloft, Buspar, Haldol and some non-psychiatric meds in addition to the Abilify, but the addition of the Abilify was great. I’m doing really pretty well these days. Sometimes I have anxiety, although I think it might generally be related to performance issues with school. I also tried taking Topamax to help with weight loss, but I thought it might be making me stupid and giving me more anxiety, so I quit taking it. I think overall, the Topamax was not helping. It seemed like I was becoming less motivated and more sad with it. I also had that bad anxiety day that I wrote about recently.
So, I think I was just hoping for a magic weightloss bullet with the Topamax. It didn’t work. Boo. I have lost about 90-100 pounds though which is good, but I still need to be less sedentary. I’m also a believer in fat acceptance, but of course it is hard to say that I never want to try to lose weight. I would be an even bigger believer in fat acceptance if I wasn’t actually fat I think!!! hahaha. I know that sounds ridiculous, but it is kind of true. I can accept the hell out of everyone’s fatness, but my own! lol.
Anyway, enough about fatness for now. What I want to say is that I’m doing well on the whole. My sleep patterns have improved with my sleep apnea machine, and while I’m not sleeping on any kind of normal schedule yet, I’m getting sleep every day and mostly at the same time! I still tend to be somewhat paranoid, but I’ve found that opening up with people over the years on the internet has really helped me to realize that I don’t need to be afraid of everyone in the world. I still have some delusional thoughts that blow through my brain now and then, but I consider them to be more of a slight annoyance than a big deal right now. But seriously, it is because of the medicine. If I wasn’t taking my meds, and doing so faithfully, I would be in and out of hospitals and massively psychotic. Some people don’t believe me, because I “seem so normal,” but I have to wonder what THAT means anyway? And, I don’t know, it seems like I should be insulted when people say that to me, but I’m not sure why I find it so insulting! I don’t necessarily want to be abnormal, even though I pretty much am, but I think it just bothers me that people attach a kind of value judgement to the term “normal” as if “normal” is superior. It is definitely easier to live in the world if you are “normal,” but it isn’t the only way to be in the world, that’s for sure. Normal is just such a peculiar word, no?
So, I’m doing fine. Some anxiety here and there, some weird thoughts here and there…a depressed mood now and then, but mostly just good. Which is nice. Thank you meds and thank you lucky stars! So, that’s my update after living with schizophrenia for 24 years. Wow! 24 years! Man am I getting old!!! LOL.
Terrible Anxiety
Anti-anxiety meds, Anxiety, Anxiety Attacks, Kristin Bell, Mental Health, Mental Illness, Psych Meds, Psychiatry, PsychologySometimes I get terrible anxiety that I can’t seem to make go away. I try my usual coping mechanisms like eating (bad idea), and obsessing on the computer (bad idea), but those don’t help. Sometimes I plop down in bed and try to relax my way out of the anxiety. It probably doesn’t help that I drink a lot of coffee, but I really feel like the coffee doesn’t do much to me. It feels more like a different kind of anxiety than a coffee-induced jittery type anxiety. Lately, I’ve tried focusing my anxiety into doing productive things like making cats and cleaning and doing homework. Sometimes I can harness it and actually get stuff done. Other times I’m too agitated to concentrate. The making cats thing seems to help a lot, because it involves using my hands and my imagination and I can sort of zone out on it. I also have to focus on details which is helpful. I feel guilty that I’m making cats instead of doing my math homework sometimes, but there are times when I just can’t motivate myself to do math–like tonight. I really really need to do my math, but I’m not doing it. So, I could either start on a new cat or just fritter away my time doing nothing. I think I might start a new cat despite the guilt of not doing my homework. I do take Buspar, which is an anti-anxiety medication, but it doesn’t seem to do all that much. I think part of it is that I need to figure out why I’m so keyed up. I know that part of it is that I’m worried about my school work. Perhaps another part is that my parents just came back home after being gone for three months to Arizona and I’m having to go through some adjustment having people back in the house again. It is just an adjustment I think I need to get used to. Anyway. Writing about it has helped a little I think.
The End of Asperger’s?
2012, Asperger's, Aspies, DSM-5, Kristin Bell, Mental Health, Mental Illness, neuroscience, Psychiatry, Psychology, revisionsI was just posting about this on Facebook, so I thought I’d drop a note about it here too. According to Scientific American Mind, May/June 2012, one of the changes that is coming to the DSM-5 (aside from dropping the roman numerals) is that they will be getting rid of the category of Asperger’s. Instead, people with this disorder will be labeled on a spectrum disorder with levels of severity noted. I’m including the short article here, so you can read more about it. It was kind of surprising to me to hear about this. I know that there are a lot of people with Asperger’s who have parts of their identity wrapped up in the diagnostic criteria. It would be like them getting rid of schizophrenia I guess. Suddenly some part of your identity is renamed. It is kinda strange. I don’t know if it is good or bad. That is part of the tricky thing about mental disorders and labels…most people with a mental disorder usually wind up having some part of their identity tied to a label. For good or bad or whatever…it just seems to happen.
Schizowhat? Website!
Acceptance, Activism, Kristin Bell, Lunatic, Mental Health, Mental Illness, neuroscience, Problems, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, schizowhat?, Shame, stigma, StoriesI was just informed of this great project called Schizowhat? that is a website aimed at raising awareness about schizophrenia. For those of you who don’t know, I have schizophrenia. I was first diagnosed when I was about 15/16 years old. I hope others of you who are interested or in some way impacted by schizophrenia will check out the website and contribute! Let’s fight the stigma! Yay!








