As a Society We Lack the Will to Care About Mental Illness

2020, Abilify, Abilify Maintena, Acceptance, Activism, Addiction, Alcoholics, Allies, American, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Borderline Personality, BPD, capitalism, cerebellum, crazy, DBT, deinstitutionalization, Denial, Depression, disability, Discrimination, discussion, Diseases, drugs, DSM-5, Education, election, Equality, Families, Family, government waste, Haldol, Haldol DEC, Haldol Decanoate, homeless, houseless, incarceration, incompetence, insanity, institutionalization, Kristin Bell, Lame-assness, Lithium, long-acting injectables, Manic-Depressive, medical, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Narcotics, Paranoid Schizophrenia, Perception, POC, POTUS, prison, privilege, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, self-care, Self-Harm, Self-Injury, shooting, Social Worker, Suicide, Therapist, treatment, treatment of the mentally ill, treatment-resistant, US Government, US History, US Politics, USA

My latest post on quora:

https://www.quora.com/Why-in-recent-history-have-we-respectively-committed-many-probably-too-many-people-afflicted-with-mental-illnesses-and-then-becoming-reactionary-and-releasing-almost-all-to-the-streets/answer/Kristin-Bell-2?ch=1&share=bba85263&srid=8eZO&fbclid=IwAR22pUG1I1nlsYN-Ra_1FHKpAFcMUaxOvw0PKvTBBngjjZoOZZIbAQg_hQ4

Must Watch Video!

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This is a great presentation/speech. I hope you can watch and share it! It really needs to go viral! Hopefully the correct video will play. It is a TED talk about mental illness and community.

Friends with Mental Illness and Those Who Love Us, Please Take This NAMI Survey!

Bipolar, Depression, Emergency Room, ER, Mental Health, Mental Illness, NAMI, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, survey, treatment of the mentally ill

ERMentalHealth

This is a survey by NAMI about experiences with ER mental health services. I believe the survey is for both people with mental illness and friends/family who have experienced the ER mental health situation. Please take the survey to help improve ER mental health treatment. I hope by taking this survey ERs will listen to how to improve things!

https://www.surveymonkey.com/s/G5QCPP9

Suicide

2013, Addiction, Alcohol, Alcoholics, Anorexia, Bipolar, Borderline Personality, BPD, Bulimia, Bullying, Compulsive Eating, Compulsive Exercising, Counselor, Dead, death, Depression, Dyke, end of world, Fag, Fat, Fat Hatred, Gay, GBLT, gender, Homo, Homophobia, Homosexual, Hope, insanity, Lesbian, Lithium, Lunatic, Mania, Manic, Manic-Depressive, Mental Health, Mental Illness, ocd, Panic Attacks, Pansexual, Paranoid Schizophrenia, Problems, Psych Meds, Psycho, Psychosis, Queer, Schizophrenia, self-care, Self-Harm, Self-Injury, Sleep Disorders, Suicide, Support System, Surviving, Trannie, Trans

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International Suicide Hotlines  USA Suicide Hotlines

 

 

You Know Your Symptoms the Best!

2013, Abilify, Abilify Maintena, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Anxiety Attacks, Bipolar, Borderline Personality, BPD, Brain, Bulimia, Compulsive Eating, Compulsive Exercising, DBT, Depression, Eating Disorders, EDNOS, Education, Haldol, Haldol DEC, Haldol Decanoate, Happy, Health, Injections, Kristin Bell, Lithium, long-acting injectables, Mania, Manic, Manic-Depressive, Mental Health, Mental Illness, Mood Stabilizers, negative symptoms, Obsessive-Compulsive Disorder, ocd, Paranoid Schizophrenia, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, self-care, Self-Harm, Self-Injury, stigma, Stress, Support System, symptoms, treatment, Zoloft, Zyprexa

pills

Recently I made a medication change (with the help of my psychiatrist), and as you might know from your own interactions with meds sometimes it can cause issues to develop. I was happily strolling along for a couple of months with a few bad days here and there, and then I started to notice the bad days piling up more often. I was really irritable, sad, became unmotivated, and suicide starting sounding better. I became alarmed, because I knew something was going wrong, but how was I supposed to explain to my psychiatrist that “irritable” is a symptom for me?

The problem with mental illness is that even when we fit into a diagnosed category of disorder, we all have our own unique symptoms that we need to pay attention to. I have schizophrenia, but for years I didn’t appear “sick enough” to most doctors, because they expected me to be talking to the walls and completely disheveled. There were times when I was talking to the walls and completely disheveled, but the doctors rarely saw me during those times, so they figured I wasn’t that bad off. Because I could communicate relatively well most doctors dismissed schizophrenia as a diagnosis.

Over the years I have come to realize what my symptoms are (for the most part), and now that I am doing better I can advocate for myself more effectively. However, it still isn’t easy to call up my psychiatrist and say “wow, I’m extremely irritable, this isn’t normal for me, and I need to increase my meds.” Most psychiatrists won’t believe that “irritable” is in any way related to schizophrenia, but for me (and many others) it is. I don’t become psychotic over night, and I don’t believe that I should have to be talking to walls in order to get the help I need. I also don’t believe that people should have to try to kill themselves before mental health professionals take people seriously.

Unfortunately, a lot of mental health professionals won’t take a person seriously unless they are debilitated to the point of needing to be hospitalized. So, as people living with mental illness or people who love people with mental illness, we have to be very proactive about getting the help we need before it turns into a crisis. Think about the good days and what you are like on those days, and compare them to the bad days. What are YOUR symptoms? How do things manifest in your day to day life? You might want to write down what you know your symptoms to be, and take that list with you when you talk to your doctor. It isn’t easy or fun, but we have to advocate for ourselves even when we are not doing our best.

In the end, you know your symptoms the best. Remember that you aren’t “crazy” for wanting to feel better and you aren’t making up excuses. Be pragmatic and straightforward, and get the help you need.

Update on Abilify Maintena Use!

2013, Abilify, Abilify Maintena, Bipolar, crazy, drugs, Haldol, Haldol DEC, Haldol Decanoate, insanity, Kristin Bell, long-acting injectables, Medicine, Mental Health, Mental Illness, negative symptoms, Paranoid Schizophrenia, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, Science, symptoms, treatment, treatment-resistant

Hello Abilify Maintena!

2013, Abilify, Abilify Maintena, Anti-psychotics, Chemistry, drugs, extended release, Haldol, Haldol DEC, Haldol Decanoate, Health, Injections, Kristin Bell, long-acting injectables, Mental Health, Mental Illness, negative symptoms, neuroscience, neurotransmitters, Paranoid Schizophrenia, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, Risperdal, schizoaffective disorder, Schizophrenia, Seroquel, stigma, symptoms, Trazadone, treatment, treatment-resistant, Trilifon, Zyprexa

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Some of you may remember that I have been getting Haldol Decanoate injections for the past 13 years or so in order to keep my schizophrenia in check. I wrote about it here: https://kristinbell.org/2012/06/14/the-haldol-injections-after-10-years/. Recently Abilify Maintena, the long-acting injectable form of Abilify came onto the market. After discussing it with my doctor, we decided to give it a try. I have been taking the oral form of Abilify along with the Haldol Dec injections for about two or three years with no adverse side effects, and it has really improved my functioning as well. The long term risks of side effects like tardive dyskinesia are much higher with the Haldol than with the Abilify which is one reason why we decided to switch. Abilify also has fewer metabolic side effects (things like less weight gain are associated with Abilify). We are taking a giant leap into the great unknown. I got my first injection of the Abilify tonight. It comes in an injection kit with sterile water that must be mixed with the powder Abilify and then injected. The Haldol is an oil-based mixture that is also injected. I am hoping to also have less sedation side effects from the Abilify. I’m just crossing my fingers that all will go well. I will keep you all updated as time passes. It is also interesting to note that Abilify Maintena has been approved for much longer in many other countries, but it just became available in the US. The US also lags behind many European countries in the administration of injectable forms of antipsychotics. Personally, I think that all people with chronic schizophrenia should give injectable antipsychotics a try. The injections don’t hurt and it is much easier to manage than oral medications. I’m including some pics of what my injection kit looks like too. It looks complicated, but it really only took about 4-5 minutes to administer including reading the directions! I’m saying Hello to Abilify Maintena and goodbye to my old friend Haldol Decanoate!

Schizophrenia and Negative Symptoms: Q&A with Dr. Potkin

2013, Abilify, affective flattening, alogia, Anti-anxiety meds, Anti-depressants, Anti-psychotics, asociality, avolition, Biology, Bipolar, Brain, Depakote, Depression, dopamine hypothesis, Dr. Steven G. Potkin, drugs, Education, Genentech, Geodon, Haldol, Haldol DEC, Haldol Decanoate, Health, insanity, Irvine (UCI), Kristin Bell, Lithium, Mania, Manic, Medicine, Mental Health, Mental Illness, Mood Stabilizers, N-methyl-D-aspartate, NAMI, negative symptoms, neuron, neuroscience, neurotransmitters, NMDA, NMDA receptor hypofunction hypothesis, Paranoid Schizophrenia, Paxil, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, Risperdal, schizoaffective disorder, Schizophrenia, Science, Seroquel, stigma, Support System, Surviving, symptoms, synapse, sz, Therapist, Trazadone, treatment, treatment-resistant, Trilifon, Wellbutrin, Zoloft, Zyprexa

negsymp I have some great news! I was able to ask Dr. Steven G. Potkin, Professor of Psychiatry in the Department of Psychiatry and Human Behavior at the University of California, Irvine (UCI) Medical Center, some questions regarding the negative symptoms of schizophrenia. He is also the Robert R. Sprague Endowed Chair in Brain Imaging. It was a brief, by email interview, but I’m happy to share what I’ve learned with you all! The following is the Q&A:

Kristin: What are negative symptoms?
Dr. Potkin: “Negative” does not refer to a person’s attitude, but instead to a lack of characteristics that should be present. Symptoms include reduced amount and content of speech, even when encouraged to interact (alogia), lack of emotional and facial expression (affective flattening), diminished ability to begin and sustain activities (avolition), decreased ability to find pleasure in everyday life (anhedonia) and social withdrawal (asociality). [1] [2]

Negative symptoms can appear a few years before other symptoms appear in young adulthood in the so-called “prodromal” stage of the illness.[3] Unfortunately these symptoms often go undetected because they manifest themselves as issues common among teenagers: social withdrawal, problems with school work, irritability, depression and sleeping problems.[4]

Kristin: Do all people with schizophrenia have negative symptoms?
Dr. Potkin: No, but at any point in time, negative symptoms can affect approximately 50 percent or more of people with schizophrenia.[5] [6]

Kristin: How do negative symptoms affect a person with schizophrenia? How do they affect their family and friends?
Dr. Potkin: Research suggests that for people living with schizophrenia, negative symptoms are key factors in poor quality of life as well as problems with personal hygiene, school and work performance, maintaining relationships, interacting within the community, and participating in social activities. [7] [8] [9] [10]

For caregivers of people with schizophrenia, negative symptoms may cause more burden than do other types of symptoms as they see their loved ones life isolated and lacking in meaning or joy. [11]

Kristin: How are negative symptoms currently treated?
Dr. Potkin: Current treatments for schizophrenia focus on reducing characteristic symptoms and can include both medication and psychosocial interventions.[12] No effective medication treatment has yet been approved for specific treatment of negative symptoms. Despite progress in the medication side of treatment, there are still unmet needs in terms of symptom control. A large study found that despite treatment, approximately 57 percent of people receiving treatment for a schizophrenia spectrum disorder still had at least one negative symptom.[10]

Kristin: What is the research that Genentech is doing regarding negative symptoms?
Dr. Potkin: Researchers at Genentech are pursuing new treatment strategies for schizophrenia, including increasing N-methyl-D-aspartate (NMDA) receptor activity in the brain in order to target the mechanism that may be a common link between the positive, negative and cognitive symptoms of the disorder.[7] [9] [11] [12]

Specifically, through a clinical trial program, Genentech is looking at an investigational medication for people with schizophrenia, including people who experience mostly negative symptoms of schizophrenia, despite taking medication. For more information, please visit www.SearchLyteschizophrenia.com

Kristin: How can family and friends of someone with schizophrenia help someone with negative symptoms?
Dr. Potkin: Caregivers can talk to doctors about interventions including medication, psychosocial rehabilitation (work, school, relationships), medical care and wellness, and therapy (e.g. cognitive behavioral therapy and peer support groups), as well as ongoing clinical trials.[13] They can work with physicians to find the medications and non-medicine therapies that are right for their loved one. Different medicines may have different side effects. Caregivers can also consider programs from the National Alliance on Mental Illness (NAMI) including:

• NAMI Hearts and Minds

– Online, interactive wellness initiative

www.nami.org/heartsandminds

• NAMI Peer-to-Peer

– Free, 9-week educational course on recovery

www.nami.org/peertopeer

• NAMI Connection

– Recovery support group for adults

www.nami.org/connection

Kristin: Do scientists know the biological mechanisms involved in negative symptoms? If so, what are the areas of the brain and/or mechanisms involved in negative symptoms?
Dr. Potkin: In the 1970s, the “dopamine hypothesis” of schizophrenia emerged, suggesting the biological basis of schizophrenia was an excess of signaling by dopamine, a chemical messenger in the brain. This theory, however, could not explain negative or cognitive symptoms.[6] In the late 1980’s a newer theory suggested positive, negative and cognitive symptoms could all be due to reduced function of NMDA receptors in the brain. This theory is now known as the “NMDA receptor hypofunction hypothesis.”[6] [7] [8] [9]

Researchers are pursuing new treatment strategies for schizophrenia, including increasing NMDA receptor function in the brain in order to target the mechanism that may be a common link between the positive, negative and cognitive symptoms of the disorder.[7] [9] [11] [12] It is thought that NMDA receptor activity is an important pathway in psychiatric disorders, especially schizophrenia.

End of article.

*Note: I would like to thank Dr. Potkin for helping me put together this interview. This research is very exciting and I hope that negative symptoms can be tackled in this decade! I know how debilitating they can be!

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1.     Gard DE, Kring AM, Gard MG, Horan WP, Green MF. Anhedonia in schizophrenia: distinctions between anticipatory and consummatory pleasure. Schizophr Res. Jul 2007;93(1-3):253-260.

2.     Strauss GP, Gold JM. A new perspective on anhedonia in schizophrenia. Am J Psychiatry. Apr 2012;169(4):364-373.

3.     Stahl SM. Stahl’s Essential Psychopharacology: Neuroscientific Basis and Practical Applications. 3rd ed. New York: Cambridge University Press; 2008.

4.     National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

5.     Kirkpatrick B, Fenton WS, Carpenter WT, Jr., Marder SR. The NIMH-MATRICS consensus statement on negative symptoms. Schizophr Bull. Apr 2006;32(2):214-219.

6.     Bobes J, Arango C, Garcia-Garcia M, Rejas J. Prevalence of negative symptoms in outpatients with schizophrenia spectrum disorders treated with antipsychotics in routine clinical practice: findings from the CLAMORS study. J Clin Psychiatry. Mar 2010;71(3):280-286.

7.     Ho BC, Nopoulos P, Flaum M, Arndt S, Andreasen NC. Two-year outcome in first-episode schizophrenia: predictive value of symptoms for quality of life. Am J Psychiatry. Sep 1998;155(9):1196-1201.

8.     Kirkpatrick B, Fenton WS, Carpenter WT, Jr., Marder SR. The NIMH-MATRICS consensus statement on negative symptoms. Schizophr Bull. Apr 2006;32(2):214-219.

9.     Kurtz MM. Symptoms versus neurocognitive skills as correlates of everyday functioning in severe mental illness. Expert Rev Neurother. Jan 2006;6(1):47-56.

10.   Milev P, Ho BC, Arndt S, Andreasen NC. Predictive values of neurocognition and negative symptoms on functional outcome in schizophrenia: a longitudinal first-episode study with 7-year follow-up. Am J Psychiatry. Mar 2005;162(3):495-506.

11.   Provencher HL, Mueser KT. Positive and negative symptom behaviors and caregiver burden in the relatives of persons with schizophrenia. Schizophr Res. Jul 25 1997;26(1):71-80.

12.   National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

13.   National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

Sign the Petition to Increase Funding for Research for Mental Illness

Anti-depressants, Anti-psychotics, Anxiety, Bipolar, congress, cure, democrat, Depression, Health, Kristin Bell, Mental Health, Mental Illness, petition, politics, POTUS, President, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, republican, Research, schizoaffective disorder, Schizophrenia

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Hi! Just wanted to post this to ask people to please sign the petition to the President and Congress to increase funding for research related to finding cures for mental illness. It only takes a minute! Please share with your friends too!

https://www.change.org/petitions/to-the-president-and-congress-fund-research-to-cure-mental-illness

Shootings, Shootings Everywhere!

2012, Clackamas Town Center, Connecticut, controversial, Crime, crimes, Culture of Violence, Denial, Discrimination, gunman, Guns, insanity, Kristin Bell, Las Vegas, Lunatic, Male, Men, Mental Health, Mental Illness, OR, Oregon, Paranoid Schizophrenia, Portland, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, school, shooting, Shopping, Suicide, Support System, Surviving, USA, Violence

In the United States in the past week we have been shocked and devastated by public shootings. First in Oregon at Clackamas Town Center, then in Connecticut at an elementary school and then in Las Vegas at a hotel. Most people, myself included, are horrified at the violence. Naturally, we now all seem to be debating about how to prevent these senseless acts. Some people latch onto gun control, some people latch onto our violently oriented culture, and some people latch onto mental illness as an issue. I honestly don’t know that there are any answers or actions that society can make as a whole to prevent things like this happening in the future, but this bit of rant is not about answers exactly. What I want to talk about is what is NOT the answer.

What is NOT the answer is scapegoating any one group of people. From my perspective as a person living with mental illness, I am (of course) sensitive to people ranting about how the mentally ill should be locked up or about how all of the shooters must have been mentally ill. Honestly, we don’t know enough about the situations or people to comment. What I have to say time and time again is that statistics bear out the fact that mentally ill people are generally not violent and are, in fact, more likely to be the victims of violent crime than the perpetrators of violent crime. People with mental illness are often more of a threat to themselves than to anyone else. Even if all of the shooters turn out to be mentally ill, that does not mean that all people with mental illness are violent. We can note also that all of the shooters were male, but that doesn’t mean that all men are violent and that all men should be locked away from society or have their rights stripped.

It is distressing to me that so often the conversation will turn into attacks on mentally ill people aka “the crazies” and how to keep them away from “the rest of us.” There are literally millions (or more) people living with mental illness who never harm anyone. If someone is violent AND mentally ill, that does not mean they are violent BECAUSE they are mentally ill. They are violent, because they are violent. We should focus our energies on how to make the world a less violent one with people who are less violent, not perpetuate stereotypes and attack other humans who have done nothing wrong.