Smoother Transitions Schizophrenia GIF

October 10, 2015 at 5:19 am | Posted in 2015, Acceptance, Activism, adobe cs6, animated gif, Anti-psychotics, Art, design, gif, graphic design, Mental Health, Mental Illness, Psychiatry, Psychology, Psychosis, schizoaffective disorder, Schizophrenia | Leave a comment

animatedschizophrenia2

Must Watch Video!

December 10, 2014 at 4:58 am | Posted in Abilify, Abilify Maintena, Acceptance, Activism, Allies, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Anxiety Attacks, awareness, Bipolar, BPD, Brain, Depakote, Depression, Diseases, DSM-5, Effexor, Emergency Room, Families, Family, Geodon, Haldol, Health, Kristin Bell, learning through film, Lithium, Mania, Manic, Manic-Depressive, MAO Inhibitors, medical, Medicine, Mental Health, Mental Illness, Obsessive-Compulsive Disorder, ocd, Prozac, Psych Meds, Psychiatrist, Psychiatry, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, Seroquel, sickness, stigma, Stories, Suicide, Support System, Surviving, symptoms, TED Talk, treatment, treatment of the mentally ill, Video, Zoloft, Zyprexa | Leave a comment

This is a great presentation/speech. I hope you can watch and share it! It really needs to go viral! Hopefully the correct video will play. It is a TED talk about mental illness and community.

You Know Your Symptoms the Best!

October 4, 2013 at 5:56 pm | Posted in 2013, Abilify, Abilify Maintena, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Anxiety Attacks, Bipolar, Borderline Personality, BPD, Brain, Bulimia, Compulsive Eating, Compulsive Exercising, DBT, Depression, Eating Disorders, EDNOS, Education, Haldol, Haldol DEC, Haldol Decanoate, Happy, Health, Injections, Kristin Bell, Lithium, long-acting injectables, Mania, Manic, Manic-Depressive, Mental Health, Mental Illness, Mood Stabilizers, negative symptoms, Obsessive-Compulsive Disorder, ocd, Paranoid Schizophrenia, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, self-care, Self-Harm, Self-Injury, stigma, Stress, Support System, symptoms, treatment, Zoloft, Zyprexa | Leave a comment

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Recently I made a medication change (with the help of my psychiatrist), and as you might know from your own interactions with meds sometimes it can cause issues to develop. I was happily strolling along for a couple of months with a few bad days here and there, and then I started to notice the bad days piling up more often. I was really irritable, sad, became unmotivated, and suicide starting sounding better. I became alarmed, because I knew something was going wrong, but how was I supposed to explain to my psychiatrist that “irritable” is a symptom for me?

The problem with mental illness is that even when we fit into a diagnosed category of disorder, we all have our own unique symptoms that we need to pay attention to. I have schizophrenia, but for years I didn’t appear “sick enough” to most doctors, because they expected me to be talking to the walls and completely disheveled. There were times when I was talking to the walls and completely disheveled, but the doctors rarely saw me during those times, so they figured I wasn’t that bad off. Because I could communicate relatively well most doctors dismissed schizophrenia as a diagnosis.

Over the years I have come to realize what my symptoms are (for the most part), and now that I am doing better I can advocate for myself more effectively. However, it still isn’t easy to call up my psychiatrist and say “wow, I’m extremely irritable, this isn’t normal for me, and I need to increase my meds.” Most psychiatrists won’t believe that “irritable” is in any way related to schizophrenia, but for me (and many others) it is. I don’t become psychotic over night, and I don’t believe that I should have to be talking to walls in order to get the help I need. I also don’t believe that people should have to try to kill themselves before mental health professionals take people seriously.

Unfortunately, a lot of mental health professionals won’t take a person seriously unless they are debilitated to the point of needing to be hospitalized. So, as people living with mental illness or people who love people with mental illness, we have to be very proactive about getting the help we need before it turns into a crisis. Think about the good days and what you are like on those days, and compare them to the bad days. What are YOUR symptoms? How do things manifest in your day to day life? You might want to write down what you know your symptoms to be, and take that list with you when you talk to your doctor. It isn’t easy or fun, but we have to advocate for ourselves even when we are not doing our best.

In the end, you know your symptoms the best. Remember that you aren’t “crazy” for wanting to feel better and you aren’t making up excuses. Be pragmatic and straightforward, and get the help you need.

Hello Abilify Maintena!

May 24, 2013 at 9:45 pm | Posted in 2013, Abilify, Abilify Maintena, Anti-psychotics, Chemistry, drugs, extended release, Haldol, Haldol DEC, Haldol Decanoate, Health, Injections, Kristin Bell, long-acting injectables, Mental Health, Mental Illness, negative symptoms, neuroscience, neurotransmitters, Paranoid Schizophrenia, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, Risperdal, schizoaffective disorder, Schizophrenia, Seroquel, stigma, symptoms, Trazadone, treatment, treatment-resistant, Trilifon, Zyprexa | Leave a comment

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Some of you may remember that I have been getting Haldol Decanoate injections for the past 13 years or so in order to keep my schizophrenia in check. I wrote about it here: https://kristinbell.org/2012/06/14/the-haldol-injections-after-10-years/. Recently Abilify Maintena, the long-acting injectable form of Abilify came onto the market. After discussing it with my doctor, we decided to give it a try. I have been taking the oral form of Abilify along with the Haldol Dec injections for about two or three years with no adverse side effects, and it has really improved my functioning as well. The long term risks of side effects like tardive dyskinesia are much higher with the Haldol than with the Abilify which is one reason why we decided to switch. Abilify also has fewer metabolic side effects (things like less weight gain are associated with Abilify). We are taking a giant leap into the great unknown. I got my first injection of the Abilify tonight. It comes in an injection kit with sterile water that must be mixed with the powder Abilify and then injected. The Haldol is an oil-based mixture that is also injected. I am hoping to also have less sedation side effects from the Abilify. I’m just crossing my fingers that all will go well. I will keep you all updated as time passes. It is also interesting to note that Abilify Maintena has been approved for much longer in many other countries, but it just became available in the US. The US also lags behind many European countries in the administration of injectable forms of antipsychotics. Personally, I think that all people with chronic schizophrenia should give injectable antipsychotics a try. The injections don’t hurt and it is much easier to manage than oral medications. I’m including some pics of what my injection kit looks like too. It looks complicated, but it really only took about 4-5 minutes to administer including reading the directions! I’m saying Hello to Abilify Maintena and goodbye to my old friend Haldol Decanoate!

Schizophrenia and Negative Symptoms: Q&A with Dr. Potkin

May 20, 2013 at 7:48 pm | Posted in 2013, Abilify, affective flattening, alogia, Anti-anxiety meds, Anti-depressants, Anti-psychotics, asociality, avolition, Biology, Bipolar, Brain, Depakote, Depression, dopamine hypothesis, Dr. Steven G. Potkin, drugs, Education, Genentech, Geodon, Haldol, Haldol DEC, Haldol Decanoate, Health, insanity, Irvine (UCI), Kristin Bell, Lithium, Mania, Manic, Medicine, Mental Health, Mental Illness, Mood Stabilizers, N-methyl-D-aspartate, NAMI, negative symptoms, neuron, neuroscience, neurotransmitters, NMDA, NMDA receptor hypofunction hypothesis, Paranoid Schizophrenia, Paxil, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, psychoanalysis, Psychology, Psychosis, Risperdal, schizoaffective disorder, Schizophrenia, Science, Seroquel, stigma, Support System, Surviving, symptoms, synapse, sz, Therapist, Trazadone, treatment, treatment-resistant, Trilifon, Wellbutrin, Zoloft, Zyprexa | Leave a comment

negsymp I have some great news! I was able to ask Dr. Steven G. Potkin, Professor of Psychiatry in the Department of Psychiatry and Human Behavior at the University of California, Irvine (UCI) Medical Center, some questions regarding the negative symptoms of schizophrenia. He is also the Robert R. Sprague Endowed Chair in Brain Imaging. It was a brief, by email interview, but I’m happy to share what I’ve learned with you all! The following is the Q&A:

Kristin: What are negative symptoms?
Dr. Potkin: “Negative” does not refer to a person’s attitude, but instead to a lack of characteristics that should be present. Symptoms include reduced amount and content of speech, even when encouraged to interact (alogia), lack of emotional and facial expression (affective flattening), diminished ability to begin and sustain activities (avolition), decreased ability to find pleasure in everyday life (anhedonia) and social withdrawal (asociality). [1] [2]

Negative symptoms can appear a few years before other symptoms appear in young adulthood in the so-called “prodromal” stage of the illness.[3] Unfortunately these symptoms often go undetected because they manifest themselves as issues common among teenagers: social withdrawal, problems with school work, irritability, depression and sleeping problems.[4]

Kristin: Do all people with schizophrenia have negative symptoms?
Dr. Potkin: No, but at any point in time, negative symptoms can affect approximately 50 percent or more of people with schizophrenia.[5] [6]

Kristin: How do negative symptoms affect a person with schizophrenia? How do they affect their family and friends?
Dr. Potkin: Research suggests that for people living with schizophrenia, negative symptoms are key factors in poor quality of life as well as problems with personal hygiene, school and work performance, maintaining relationships, interacting within the community, and participating in social activities. [7] [8] [9] [10]

For caregivers of people with schizophrenia, negative symptoms may cause more burden than do other types of symptoms as they see their loved ones life isolated and lacking in meaning or joy. [11]

Kristin: How are negative symptoms currently treated?
Dr. Potkin: Current treatments for schizophrenia focus on reducing characteristic symptoms and can include both medication and psychosocial interventions.[12] No effective medication treatment has yet been approved for specific treatment of negative symptoms. Despite progress in the medication side of treatment, there are still unmet needs in terms of symptom control. A large study found that despite treatment, approximately 57 percent of people receiving treatment for a schizophrenia spectrum disorder still had at least one negative symptom.[10]

Kristin: What is the research that Genentech is doing regarding negative symptoms?
Dr. Potkin: Researchers at Genentech are pursuing new treatment strategies for schizophrenia, including increasing N-methyl-D-aspartate (NMDA) receptor activity in the brain in order to target the mechanism that may be a common link between the positive, negative and cognitive symptoms of the disorder.[7] [9] [11] [12]

Specifically, through a clinical trial program, Genentech is looking at an investigational medication for people with schizophrenia, including people who experience mostly negative symptoms of schizophrenia, despite taking medication. For more information, please visit www.SearchLyteschizophrenia.com

Kristin: How can family and friends of someone with schizophrenia help someone with negative symptoms?
Dr. Potkin: Caregivers can talk to doctors about interventions including medication, psychosocial rehabilitation (work, school, relationships), medical care and wellness, and therapy (e.g. cognitive behavioral therapy and peer support groups), as well as ongoing clinical trials.[13] They can work with physicians to find the medications and non-medicine therapies that are right for their loved one. Different medicines may have different side effects. Caregivers can also consider programs from the National Alliance on Mental Illness (NAMI) including:

• NAMI Hearts and Minds

– Online, interactive wellness initiative

www.nami.org/heartsandminds

• NAMI Peer-to-Peer

– Free, 9-week educational course on recovery

www.nami.org/peertopeer

• NAMI Connection

– Recovery support group for adults

www.nami.org/connection

Kristin: Do scientists know the biological mechanisms involved in negative symptoms? If so, what are the areas of the brain and/or mechanisms involved in negative symptoms?
Dr. Potkin: In the 1970s, the “dopamine hypothesis” of schizophrenia emerged, suggesting the biological basis of schizophrenia was an excess of signaling by dopamine, a chemical messenger in the brain. This theory, however, could not explain negative or cognitive symptoms.[6] In the late 1980’s a newer theory suggested positive, negative and cognitive symptoms could all be due to reduced function of NMDA receptors in the brain. This theory is now known as the “NMDA receptor hypofunction hypothesis.”[6] [7] [8] [9]

Researchers are pursuing new treatment strategies for schizophrenia, including increasing NMDA receptor function in the brain in order to target the mechanism that may be a common link between the positive, negative and cognitive symptoms of the disorder.[7] [9] [11] [12] It is thought that NMDA receptor activity is an important pathway in psychiatric disorders, especially schizophrenia.

End of article.

*Note: I would like to thank Dr. Potkin for helping me put together this interview. This research is very exciting and I hope that negative symptoms can be tackled in this decade! I know how debilitating they can be!

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1.     Gard DE, Kring AM, Gard MG, Horan WP, Green MF. Anhedonia in schizophrenia: distinctions between anticipatory and consummatory pleasure. Schizophr Res. Jul 2007;93(1-3):253-260.

2.     Strauss GP, Gold JM. A new perspective on anhedonia in schizophrenia. Am J Psychiatry. Apr 2012;169(4):364-373.

3.     Stahl SM. Stahl’s Essential Psychopharacology: Neuroscientific Basis and Practical Applications. 3rd ed. New York: Cambridge University Press; 2008.

4.     National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

5.     Kirkpatrick B, Fenton WS, Carpenter WT, Jr., Marder SR. The NIMH-MATRICS consensus statement on negative symptoms. Schizophr Bull. Apr 2006;32(2):214-219.

6.     Bobes J, Arango C, Garcia-Garcia M, Rejas J. Prevalence of negative symptoms in outpatients with schizophrenia spectrum disorders treated with antipsychotics in routine clinical practice: findings from the CLAMORS study. J Clin Psychiatry. Mar 2010;71(3):280-286.

7.     Ho BC, Nopoulos P, Flaum M, Arndt S, Andreasen NC. Two-year outcome in first-episode schizophrenia: predictive value of symptoms for quality of life. Am J Psychiatry. Sep 1998;155(9):1196-1201.

8.     Kirkpatrick B, Fenton WS, Carpenter WT, Jr., Marder SR. The NIMH-MATRICS consensus statement on negative symptoms. Schizophr Bull. Apr 2006;32(2):214-219.

9.     Kurtz MM. Symptoms versus neurocognitive skills as correlates of everyday functioning in severe mental illness. Expert Rev Neurother. Jan 2006;6(1):47-56.

10.   Milev P, Ho BC, Arndt S, Andreasen NC. Predictive values of neurocognition and negative symptoms on functional outcome in schizophrenia: a longitudinal first-episode study with 7-year follow-up. Am J Psychiatry. Mar 2005;162(3):495-506.

11.   Provencher HL, Mueser KT. Positive and negative symptom behaviors and caregiver burden in the relatives of persons with schizophrenia. Schizophr Res. Jul 25 1997;26(1):71-80.

12.   National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

13.   National Institute of Mental Health. Schizophrenia. 2009; http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml. Accessed July 7, 2012.

Sign the Petition to Increase Funding for Research for Mental Illness

December 29, 2012 at 5:54 pm | Posted in Anti-depressants, Anti-psychotics, Anxiety, Bipolar, congress, cure, democrat, Depression, Health, Kristin Bell, Mental Health, Mental Illness, petition, politics, POTUS, President, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, republican, Research, schizoaffective disorder, Schizophrenia | Leave a comment

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Hi! Just wanted to post this to ask people to please sign the petition to the President and Congress to increase funding for research related to finding cures for mental illness. It only takes a minute! Please share with your friends too!

https://www.change.org/petitions/to-the-president-and-congress-fund-research-to-cure-mental-illness

Bring Change 2 Mind!

October 28, 2012 at 8:16 pm | Posted in 2012, Activism, Allies, Anti-anxiety meds, Anti-depressants, Anti-psychotics, awareness, Bipolar, Bring Change 2 Mind, Depression, Kristin Bell, Mental Health, Mental Illness, Mood Stabilizers, neuroscience, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, stigma | Leave a comment

Hi! As you might know if you have scanned my blog, I make it a point to talk about mental health/illness, because I have schizophrenia and I believe in stomping out the stigma of mental illness. Well, I have this cute story to share! I was waiting outside of the classroom for my biology lab class to start this fall and started talking to a supernice girl who was in my class. We got to talking and to try to explain why I had been in school so long I decided to tell her that I have schizophrenia. Lo and behold she says “oh yah, my mom has bipolar and my brother has schizophrenia too!” What a small world!!! It turns out her whole family is active in the mental health field in advocating for the erasure of stigma related to mental illness and they have a website called http://bringchange2mind.org/ . I am always surprised when I talk to people about my own illness and then they also know someone or are someone with mental illness too! It is such a big thing in peoples’ lives and when we talk about it, it is surprising/amazing/wonderful that we aren’t alone in our struggles. So, I just wanted to share this little story and a link to the Bring Change 2 Mind website. It was a wonderful feeling to meet someone else at school who knows first hand about mental illness and to be able to talk openly about it! :) Three cheers for no more stigma!!! :)

Lindsey’s Experience with Schizophrenia

September 1, 2012 at 6:24 pm | Posted in 2012, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Art, artist, Haldol, Health, insanity, Kristin Bell, Lindsey Cormier, Medicine, Mental Health, Mental Illness, Psych Meds, Psychiatrist, Psychiatry, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, Seroquel, Zyprexa | 2 Comments

 Hey check out Lindsey’s vlog! Great to hear her story! :) She is also an amazing artist! Check out her art at http://www.etsy.com/shop/lindseycormier

Genetic Testing! Yay!

August 24, 2012 at 9:30 pm | Posted in Abilify, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, benadryl, Biology, Bipolar, Body, BPD, Buspar, Depakote, Depression, dna, drugs, Effexor, genetic testing, Genetics, Haldol, Haldol DEC, Haldol Decanoate, Kristin Bell, Lithium, Mania, Manic, Manic-Depressive, MAO Inhibitors, Medicine, Mental Health, Mental Illness, metabolic pathways, metabolize, Mood Stabilizers, Navane, neuroscience, Obsessive-Compulsive Disorder, ocd, Paranoid Schizophrenia, Paxil, plavix, Prescription Meds, Prozac, Psych Meds, Psychiatrist, Psychiatry, Psychoactive Substances, Psychology, Psychosis, Risperdal, schizoaffective disorder, Schizophrenia, Science, Seroquel, Technology, testing, Trazadone, Trilifon, warfarin, Wellbutrin, Zoloft, Zyprexa | Leave a comment

http://www.genemedrx.com/

Hey Everybody! I wanted to share with you this cool genetics testing that is available to people. I just got it done, because my nurse practitioner ordered it and Medicare pays for it. (Medicare pays for this testing, because it saves a LOT of money and can save lives!) It is really cool, because it tells you how medications will interact with your specific genetic makeup! It is extremely important if you are taking really any kind of medication. For example, had I known about my results before I took Wellbutrin years ago, it would have saved me from basically having a manic reaction to the medication. It turns out that I metabolize differently than normal on some of the metabolic pathways. This means that I will metabolize the meds on those pathways different than people without this issue. If you have Medicare, I strongly urge you to get this testing done. It could save your life from a bad genetic-medication mistake. I think many other insurance carriers might also pay for it. It also explains why I can take a lower dose of many medications and still get the desired effect from the medication. I would say that anyone who is trying to figure out their psych meds should really get this testing done too. It doesn’t just tell about psych meds though, it tells about stuff involving all other sorts of meds. Seriously, this is pretty awesome! Again, here is the link: http://www.genemedrx.com/

Got My Cure Alliance Schizophrenia Magnet Today! Yay!

August 4, 2012 at 6:41 pm | Posted in Activism, Anti-depressants, Anti-psychotics, Anxiety, Bipolar, Brain, Cure Alliance, Depression, insanity, Kristin Bell, magnet, Mania, Manic-Depressive, Mental Health, Mental Illness, Obsessive-Compulsive Disorder, ocd, Psychiatry, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, sz | Leave a comment

Hi! I’m happy to report I got my Cure Alliance schizophrenia magnet today! Strange that my bumper wouldn’t hold the magnet! haha. Anyway, please check them out at the Cure Alliance Facebook page here. Also, see the related post I made about their campaign here.

Excited About Perception!

July 21, 2012 at 6:31 pm | Posted in 2012, Acceptance, Anti-anxiety meds, Anti-depressants, Anti-psychotics, College, Crime Solver, Eric McCormack, insanity, Kristin Bell, Mental Health, Mental Illness, Paranoid Schizophrenia, Perception, Professor, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, TNT, TV, University | 1 Comment

Hey Everybody! I’m really excited about this new show on TNT called “Perception.” http://www.tntdrama.com/series/perception/

It stars Eric McCormack (of Will & Grace fame) as a university professor, author and crime solver who is also living with schizophrenia! I’m always skeptical of depictions of people with mental illness on TV and in movies, because they usually make them out to be psychopathic killers or something. I’ve watched the first two episodes of the show so far, and I think they do an excellent job of making the character seem like a regular human being! It is so fantastic! They use the hallucinations as kind of a dramatic device and employ some other Beautiful Mind-esque devices to try to make it like the viewer can see what the character is seeing. Some commenters have argued that it doesn’t show the horrific aspects of schizophrenia enough, but I personally like that they are showing him to be a regular person, and an intelligent one at that! I like that they show him holding down a job, interacting with people socially, and using the help of other people to reality test. I’m excited to see how the character and the show develop and I hope it gets picked up for another season! Please check it out if you get a chance! Again, it is on TNT Monday nights. Here is the TNT link: http://www.tntdrama.com/series/perception/

Wonderful Video Documentary About a Mother with Schizophrenia

July 21, 2012 at 4:07 am | Posted in 2012, Acceptance, Activism, Allies, Anti-psychotics, Children, Depression, Discrimination, DSM-5, Education, Families, Family, Grandmother, insanity, Kristin Bell, Mental Health, Mental Illness, Mom, Mother, Motherhood, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia | 2 Comments

I’m taking a Women’s Studies course at school and we are looking at the topic of Motherhood. This week we are discussing motherhood and disabilities, and I came across this wonderful video series that is made by a student about a mother who has schizophrenia and how it has impacted her life and the life of her daughter. I think he did a really good job! The video is divided into four parts and I hope you watch all four parts! :)

http://www.youtube.com/watch?v=Hx6j_Tyb8Uo&feature=share&list=PL81E9C419F7641FD8

The Haldol Injections: After 10+ Years

June 14, 2012 at 1:59 am | Posted in 2012, Anti-psychotics, Denial, Haldol, Haldol DEC, Haldol Decanoate, insanity, Kristin Bell, Lunatic, Medicine, Mental Health, Mental Illness, neurotransmitters, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia | 4 Comments

I first wrote about taking my Haldol injections back in 2007 in https://kristinbell.org/2007/07/23/the-haldol-injections/.

I wanted to report that yes, I’m still getting the Haldol injections now once every three weeks. Haldol is an antipsychotic medication used to treat psychosis like that found in schizophrenia. I have schizophrenia and started getting the Haldol injections back in late 2000…I guess it was November or December of 2000. The Haldol injections combined with all the other meds I take have been a miracle for me.

So far (knock on wood) I haven’t had many side-effects from the medication. I haven’t yet developed tardive dyskinesia. I hope that I don’t.

I had to start getting the Haldol injections, because I couldn’t take my medications as prescribed. It sounds like a simple enough task, but my illness got in the way of me adhering to my medication regiment, and I’d wind up going off my meds and going crazy. I’ve had a good run with the Haldol. I haven’t been hospitalized since starting it, and if you know anything about people with mental illness, that is quite a feat! :) Without the injection form of the medication I’m pretty sure I’d still be bouncing in and out of insanity and in and out of hospitals.

Haldol is a powerful medication, and not one that people enjoy taking. It can cause a lot of sedation, but in the right dose with the right brain it is a miracle drug. It doesn’t work for everyone, and I probably wouldn’t extoll the virtues of it if I was taking the oral form of the medication. With the injection form of the medication I am able to take less of the medication while still getting the benefits of it. I believe that there are also short-acting Haldol injections for acutely psychotic patients, but I am getting the long-acting injections which metabolize over a number of weeks.

I know that a lot of people, including people with schizophrenia and other brain diseases, are afraid of getting injections of medication. If you are paranoid and psychotic, like I was when I first got the injection, it is terrifying to get the injections. I actually believed that the doctors were giving me a lethal injection to kill me when I got my first dose. It turns out that it was the best thing that ever happened to me, not the worst. Now there are other medications that come in injection forms too. Meds like Risperdal and others. If Haldol doesn’t work for someone then maybe one of the other injectables will work. At any rate, I think it is worth giving them a try. It may take awhile to get used to the meds and to get the correct dosing, but it is worth it in the end.

Mental Health Update: Monday, May 28, 2012

May 28, 2012 at 1:18 am | Posted in 2012, Abilify, Acceptance, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Autobiography, Bipap, Body Image, Body Narrative, Brain, Buspar, Depression, Diary Rant, EDNOS, Fat, Fat Acceptance, Fat Hatred, Haldol, Haldol DEC, Haldol Decanoate, Happy, Health, Injections, insanity, Kristin Bell, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychoactive Substances, Psychology, Psychosis, schizoaffective disorder, Schizophrenia, Sleep, Sleep Disorders, stigma, Weight, Zoloft | Leave a comment

I thought I’d do a little mental health update, since it has been quite some time since I’ve blogged about my overall mental health. As some of you dear readers may know, I have schizophrenia. I first had issues with it when I was about 15. My first hospitalization was when I was 16. Towards the end of 2000 I got mostly stabilized with my Haldol injections and Zoloft. I haven’t been in the hospital since then! Yay! Quite a long run I’ve had and I hope it continues! For quite some time I had problems getting things done, being motivated and feeling down…that sort of thing, even though I was mostly fine. I think it was last year that I started taking Abilify and it has made a HUGE difference! I’m still taking Zoloft, Buspar, Haldol and some non-psychiatric meds in addition to the Abilify, but the addition of the Abilify was great. I’m doing really pretty well these days. Sometimes I have anxiety, although I think it might generally be related to performance issues with school. I also tried taking Topamax to help with weight loss, but I thought it might be making me stupid and giving me more anxiety, so I quit taking it. I think overall, the Topamax was not helping. It seemed like I was becoming less motivated and more sad with it. I also had that bad anxiety day that I wrote about recently.

So, I think I was just hoping for a magic weightloss bullet with the Topamax. It didn’t work. Boo. I have lost about 90-100 pounds though which is good, but I still need to be less sedentary. I’m also a believer in fat acceptance, but of course it is hard to say that I never want to try to lose weight. I would be an even bigger believer in fat acceptance if I wasn’t actually fat I think!!! hahaha. I know that sounds ridiculous, but it is kind of true. I can accept the hell out of everyone’s fatness, but my own! lol.

Anyway, enough about fatness for now. What I want to say is that I’m doing well on the whole. My sleep patterns have improved with my sleep apnea machine, and while I’m not sleeping on any kind of normal schedule yet, I’m getting sleep every day and mostly at the same time! I still tend to be somewhat paranoid, but I’ve found that opening up with people over the years on the internet has really helped me to realize that I don’t need to be afraid of everyone in the world. I still have some delusional thoughts that blow through my brain now and then, but I consider them to be more of a slight annoyance than a big deal right now. But seriously, it is because of the medicine. If I wasn’t taking my meds, and doing so faithfully, I would be in and out of hospitals and massively psychotic. Some people don’t believe me, because I “seem so normal,” but I have to wonder what THAT means anyway? And, I don’t know, it seems like I should be insulted when people say that to me, but I’m not sure why I find it so insulting! I don’t necessarily want to be abnormal, even though I pretty much am, but I think it just bothers me that people attach a kind of value judgement to the term “normal” as if “normal” is superior. It is definitely easier to live in the world if you are “normal,” but it isn’t the only way to be in the world, that’s for sure. Normal is just such a peculiar word, no?

So, I’m doing fine. Some anxiety here and there, some weird thoughts here and there…a depressed mood now and then, but mostly just good. Which is nice. Thank you meds and thank you lucky stars! So, that’s my update after living with schizophrenia for 24 years. Wow! 24 years! Man am I getting old!!! LOL.

Success at School Makes Me Happy!

December 20, 2011 at 12:48 am | Posted in Abilify, Academic, Anti-psychotics, Bipap, Brain, Calculus, Calculus Example, College, Kristin Bell, Linear Algebra, Mathematics, Psych Meds, Psychiatry, Psychoactive Substances, Psychology, Schizophrenia, Sleep, Sleep Disorders, University | Leave a comment

I’m very pleased to report that this last term at school went great! I took the first term of Calculus and Intro. to Linear Algebra and got A’s in both classes! I also had a really good time with the classes. I had great teachers too! I have seen a real improvement in my ability to actually get to classes because of my bipap sleep machine and have seen an even greater increase in my ability to do homework and concentrate since I started taking Abilify last January. Doing well in school has always been important to me, but because of my schizophrenia and sleep problems I have had a lot of issues with being able to attend and get through classes.

When I first became ill when I was 15 my grades really suffered. For the first time in my life I wasn’t a straight A student which was quite disheartening. The last two terms in school I have been feeling a lot like my old self for the first time since I was 15!!!

Anyway, this last term was great and a real ego booster! I just hope I can keep up the success! :)

Review: Loud In the House of Myself by Stacy Pershall

February 20, 2011 at 5:33 pm | Posted in Acceptance, Anorexia, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Ativan, Autobiography, Binge Eating, Bipolar, Black & White, Body, Body Image, Books, Borderline Personality, Bulimia, Compulsive Eating, Compulsive Exercising, Depakote, Depression, Eating Disorders, EDNOS, insanity, Internet, Kristin Bell, Lithium, Loud In the House of Myself, Mania, Manic, Manic-Depressive, MAO Inhibitors, memoir, Mental Health, Mental Illness, Mood Stabilizers, Navane, Prozac, Psych Meds, Psychiatrist, Psychiatry, Psychoactive Substances, Psychology, Reading, Review, Self-Harm, Self-Injury, Stacy Pershall, Stories, strange girl, Suicide, Surviving, Thin, Weightloss | Leave a comment

Loud In the House of Myself: Memoir of a Strange Girl is a new book by Stacy Pershall. Of course, I was immediately drawn to this memoir, because it is a) a memoir b) about a “strange girl” and c) deals with mental illness. Yay! Since I’m undoubtably a strange mentally ill girl, I knew I had to read this. Pershall writes about her life growing up in Arkansas and her morphing from an über-sensitive child into a teenager and young adult with Borderline and Bipolar issues. Anyone familiar with the mental illness memoir genre will certainly have heard of Elizabeth Wurtzel, and I just bring her up, because UNLIKE Wurtzel, Pershall is not whiny in her writing! Pershall is matter-of-fact about her trials and symptoms, even though the reader can imagine the actual playing out of illness to be much more harsh and unbearable.

Pershall describes her unrelenting eating disorder, mood swings and suicide attempts with a steady and precise hand. This book seems really accessible to me, because Pershall speaks not only to those of us who have been through the mental health care system, but also to people who might not really understand this special weirdness. The only thing I would like to see more of in this book is more OF this book! haha. Seriously though, I enjoyed reading this memoir and would love to read more from Pershall. I would especially recommend this book to people struggling with Borderline Personality Disorder. There is a special misery only known by Borderlines that is never really represented in the books that ostensibly deal with Borderline Personality Disorder. I really wish there were more accounts like this that show the uncrazy through the crazy of Borderline Personality Disorder.

Notes on Schizophrenia: Probability/Social Aspects

December 1, 2008 at 12:20 am | Posted in Allies, Anti-depressants, Anti-psychotics, Friends, Haldol, Kristin Bell, Mental Health, Mental Illness, Problems, Psychiatry, Schizophrenia, Surviving, Violence | 7 Comments

So, schizophrenia sounds like a really friggin’ scary deal, and, it kind of is, but the odds are that you probably will not develop it. Interestingly enough, schizophrenia effects about 1 percent of the population worldwide according to most statistics. There also seems to be little variation to the 1 percent figure. In other words, developing and developed countries seem to have the same rates of illness. It seems that there is not one place that has more or less of the disease.

Here are some other figures provided by narsad.org, Continue Reading Notes on Schizophrenia: Probability/Social Aspects…

“Manic” A New Memoir of Bipolar Disorder

May 11, 2008 at 1:55 am | Posted in Anti-anxiety meds, Anti-depressants, Anti-psychotics, Bipolar, Books, Depression, Drama, Health, Kristin Bell, Mania, Manic, Manic-Depressive, memoir, Mental Health, Mental Illness, Mood Stabilizers, Problems, Psych Meds, Psychiatrist, Psychiatry, Schizophrenia, Surviving | 1 Comment

I just finished reading “Manic: A Memoir” a few days ago, so I thought I’d share my opinion with you. The book is the memoir of this high-powered female attorney from Los Angeles who has bipolar disorder. I’m usually really interested in most Continue Reading “Manic” A New Memoir of Bipolar Disorder…

Getting Older

April 21, 2008 at 6:26 am | Posted in Anti-psychotics, Kristin Bell, Mental Health, Mental Illness, Problems, Psychiatry, Schizophrenia | 1 Comment
Tags: , ,

birthday pic

Well, my birthday is coming up. On April 24th I’ll be 35 years old! Ouch! So old! haha. I can hardly believe that it will be 20 years since I’ve been 15 years old! 20 years since I first went crazy. 20 years of getting to know schizophrenia. How did I get to be Continue Reading Getting Older…

NIMH Schizophrenia Research Participation

February 4, 2008 at 6:39 am | Posted in Amblify, Anti-psychotics, Ativan, Bipolar, Family, Geodon, Haldol, Haldol DEC, Haldol Decanoate, Health, Kristin Bell, Lunatic, Mental Health, Mental Illness, Navane, Paxil, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Research, Risperdal, Schizophrenia, Seattle, Surviving, Trazadone, Trilifon, US Government, Zyprexa | 2 Comments
labratme

Oh, so I haven’t blogged about this yet, but I went up to Seattle with my family about a week ago and participated in the National Institute of Mental Health-funded research project regarding schizophrenia. I had a really great time and the research team was totally fabulous and wonderful!

So, we arrived on a Wednesday afternoon. They took blood samples from Continue Reading NIMH Schizophrenia Research Participation…

I Feel For Ya, Britney!

January 31, 2008 at 9:43 am | Posted in Anti-anxiety meds, Anti-depressants, Anti-psychotics, Bipolar, Britney Spears, Bulimia, Buspar, Drama, Kristin Bell, Lithium, Mania, Manic, Manic-Depressive, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Prescription Meds, Problems, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Schizophrenia, Support System, Surviving, Therapist | 6 Comments
bald britney

Okay, I rarely write about celebrity gossip, but overnight Britney Spears was taken into the hospital for psychiatric evaluation and I guess I feel the need to comment. From what I’ve heard on the news, she hasn’t slept since Saturday and she’s now on a 72-hour hold. I have also been Continue Reading I Feel For Ya, Britney!…

Ironic

January 29, 2008 at 4:28 pm | Posted in Acceptance, Allies, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Cry, Education, Family, Kristin Bell, Lunatic, Medicine, Mental Health, Mental Illness, NIMH, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Purpose, Research, Schizophrenia, Seattle, Surviving | Leave a comment

cryingWhat is ironic is that I’m here in a hotel room in Seattle up late at night watching the movie “Awakenings” just as I finish my own participation in research related to my own mental illness Continue Reading Ironic…

A Book Everyone Should Read!

December 24, 2007 at 3:06 pm | Posted in Acceptance, Activism, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Bipolar, Books, Counselor, Discrimination, Elyn R. Saks, Geodon, Haldol, Haldol DEC, Haldol Decanoate, Kristin Bell, Lunatic, Medicine, Mental Health, Mental Illness, Navane, NIMH, Prescription Meds, Problems, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Reading, Risperdal, Schizophrenia, Seroquel, Surviving, The Center Cannot Hold, Therapist, Trazadone, Trilifon | Leave a comment
saksbook

I just finished reading Elyn R. Saks’ book, The Center Cannot Hold, and I highly recommend it to everyone, especially people who are touched by someone who has mental illness. The book is a memoir of Ms. Saks’ life and coming to terms with schizophrenia. From an early age she recalls having strange thoughts, but Continue Reading A Book Everyone Should Read!…

Schizophrenia Research I’m Participating In

December 2, 2007 at 6:32 pm | Posted in Acceptance, Amblify, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Family, Fun, Geodon, Haldol, Haldol DEC, Haldol Decanoate, Kristin Bell, Lunatic, Measurements, Medicine, Mental Health, Mental Illness, Mood Stabilizers, NIMH, Prescription Meds, Problems, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Research, Risperdal, Schizophrenia, Support System, Surviving, Therapist, Tips & Tricks, Trazadone, Trilifon, Zoloft, Zyprexa | 4 Comments

eye tracking

You might be asked to participate in an eye tracking exercise like the one shown above. All of the equipment is just used to keep your head still and to track your eyes.

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I just wanted to let you all know about this schizophrenia research study I am most likely going to be participating in and I hope that if any of you out there are interested, you will join in on the study! Well, as you might know, I got a new job at schizophrenia.com. Well, one day I was visiting the site and an ad popped up looking for research participants for this schizophrenia research study! Here is the link: http://www.schizophreniaresearch.net/Involved.asp

Unfortunately, at this time it isn’t an Continue Reading Schizophrenia Research I’m Participating In…

People With Schizophrenia More Logical?

November 22, 2007 at 7:19 am | Posted in Anti-psychotics, Haldol, Kristin Bell, Logic, Lunatic, Medicine, Mental Health, Mental Illness, Prescription Meds, Problems, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Risperdal, Schizophrenia, Trazadone, Trilifon, Zoloft, Zyprexa | 1 Comment

cartoonlogic

Are people with schizophrenia infact more logical than “normal” people? That is what one research study seems to indicate. Not a lot Continue Reading People With Schizophrenia More Logical?…

Tips And Tricks For Surviving A Mental Illness #11

November 18, 2007 at 8:45 am | Posted in Alcohol, Amblify, Anti-depressants, Anti-psychotics, Anxiety, Buspar, Depakote, Depression, Drama, Family, Friends, Haldol DEC, Health, Holidays, Kristin Bell, Lithium, Lunatic, Mental Health, Mental Illness, Mood Stabilizers, Panic Attacks, Paxil, Prozac, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Relaxation, Risperdal, Schizophrenia, Seroquel, Sleep Disorders, Support System, Surviving, Tips & Tricks, Wellbutrin, Xanex, Zoloft, Zyprexa | 1 Comment

hkxmas

Whew! It has been awhile since I have written a tip/trick. The last few months have been crazy, but not really in a good way. Oh well. The tip I’m writing about today has to do with this special time of year for people. This may be rather specific to people who are in the US and/or to people who celebrate certain holidays. Anyway, in the US most people have some holiday that they celebrate or they go on vacation or just have some time off. The major holidays are Thanksgiving, Chanukah, Kwanza, Christmas, New Year’s Eve and New Year’s Day. Again, I know there are more holidays that I’m sure I’m missing, but these are the big ones. So, here is my tip: Continue Reading Tips And Tricks For Surviving A Mental Illness #11…

Tips And Tricks For Surviving A Mental Illness #10

October 17, 2007 at 6:38 am | Posted in Acceptance, Amblify, Anti-anxiety meds, Anti-depressants, Anti-psychotics, Anxiety, Anxiety Attacks, Ativan, benadryl, Bipolar, Body, Buspar, Delayed Sleep Phase Disorder, Depakote, Depression, Effexor, Geodon, Haldol, Kristin Bell, Lithium, Maintenance, MAO Inhibitors, Medicine, melatonin, Mental Health, Mental Illness, Mood Stabilizers, Panic Attacks, Paxil, Pot, Prescription Meds, Problems, Prozac, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Relaxation, Risperdal, Schizophrenia, Seroquel, Sleep, Sleep Disorders, Surviving, Tips & Tricks, Trazadone, Trilifon, Wellbutrin, Xanex, Zoloft, Zyprexa | 1 Comment

sleep

<Sleeping graphic from HowStuffWorks.com>

I don’t know why I didn’t think of this tip before. Probably because I haven’t mastered this and should really follow my own advice about it. Plus my dad likes to harp on me about my problem with this a lot…which just irritates me. On with tip 10. Continue Reading Tips And Tricks For Surviving A Mental Illness #10…

Common Fallacies of Psychiatry Deniers

September 20, 2007 at 8:53 pm | Posted in Acceptance, Amblify, Anti-depressants, Anti-psychotics, Bipolar, Buspar, Denial, Depakote, Depression, drugs, Education, Geodon, Haldol, Haldol DEC, Health, Kristin Bell, Lithium, Lunatic, MAO Inhibitors, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Paxil, Prescription Meds, Psych Meds, Psychiatrist, Psychiatry, Psychiatry Denial, Psycho, Psychosis, Schizophrenia, Scientology, Seroquel, Shame, Support System, Surviving, Trazadone, Trilifon, Video, Wellbutrin, Zoloft, Zyprexa | 12 Comments

rob

The following videos are by Rob aka deidzoeb, a person from YouTube. His wife, Melinda, aka melsbasketcase, is also a YouTuber and Melinda has schizophrenia. She does well when she is properly medicated, but a lot of people go on her channel and try to convince her that her drugs are poison and that she should stop taking them. I hope you will watch all three of Rob’s great videos about Psychiatry Denial. He does a great job of showing how psychiatry deniers are simply wrong and how they try to take choice away from people with serious mental illnesses. I have included all three videos here. Please click to find them. Continue Reading Common Fallacies of Psychiatry Deniers…

Tips And Tricks For Surviving A Mental Illness #9

September 5, 2007 at 1:20 am | Posted in Acceptance, Anti-depressants, Anti-psychotics, Bipolar, Books, Depression, Eating Disorders, Education, Haldol, Health, Kristin Bell, Lithium, Lunatic, MAO Inhibitors, Medicine, Mental Health, Mental Illness, Mood Stabilizers, Prescription Meds, Problems, Psych Meds, Psychiatrist, Psychiatry, Psycho, Psychosis, Reading, Schizophrenia, Scientology, Surviving, Therapist, Tips & Tricks, Zoloft, Zyprexa | 1 Comment

neuron

Well, I think I have covered most of the basics regarding mental illness, or at least the ideas I had right off the top of my head. But, I haven’t covered this next topic yet, so here we go with number nine: Continue Reading Tips And Tricks For Surviving A Mental Illness #9…

Tips And Tricks For Surviving A Mental Illness #8

August 25, 2007 at 10:17 am | Posted in Amblify, Anti-depressants, Anti-psychotics, Bipolar, Buspar, Cat Stories, Cute, Depakote, Depression, Family, Friends, Fun, Haldol, Kristin Bell, Lunatic, MAO Inhibitors, Mental Health, Mental Illness, Mood Stabilizers, Paxil, Pet Care, Pets, Psychiatry, Psycho, Psychosis, Relaxation, Schizophrenia, Seroquel, Tips & Tricks, Wellbutrin, Working Animals, Zoloft, Zyprexa | 2 Comments

catbrain

Ah, it has been awhile since my last tip. This tip may not work for everyone, but it is a personal favorite of mine. On with the tip. Continue Reading Tips And Tricks For Surviving A Mental Illness #8…

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